Nutricia have organised a summer event for patients on low protein diets for 22nd August 2015. The event is a Viking Splash tour in Dublin City Centre. If you are interested in attending, please see the information attached: Summer Event. Contact Nutricia on 1800 923 535 or email: events.ireland@nutricia.com or louise.durcan@nutricia.com to reserve your place.
Patient and Family News
PKU Results Texting
In an effort to improve services, the dietitians in NCIMD have been piloting a service where a group of children have been receiving a text regarding their Phe levels. This has now been rolled out to all patients attending Temple Street Childrens University Hospital. If a blood result is within the normal range, the parent/guardian […]
PKU Association of Ireland meeting
The PKU Association are having a meeting on Thursday 9th July 7pm at the CityWest Hotel, Ormonde Suite, Saggart, Co Dublin. Parking available. All welcome. Please see the PKU Association’s facebook page for more information or mail pkuireland@gmail.com
PKU Picnic in the Park
The PKU Association of Ireland are organising a “Picnic in the Park ” afternoon day in Malahide Castle, North County Dublin on Sunday 21st of June at 2.00pm for parents with young children with PKU and their families. Regarding location Malahide is well signposted on the M50 ( northbound) for those driving. For those of you travelling […]
A Homocystinuria (HCU) day 17th of October 2015
A Homocystinuria (HCU) day is being planned for the 17th of October 2015. It is being organised in conjunction with Nutricia. Hopefully it will be a great day for everyone. More details to follow soon.
Temple Street News
For Temple Street News, please click here.