You may have seen in the metabolic unit that we have many new posters with QR codes. QR codes are a type of barcode that allow us to access online information. This allows you to scan a code on you mobile phone, access and save a document to your mobile phone. All of our diet […]

Art was 10 days old when we got the call. A man on the end of the line, a doctor from the hospital, told us there were abnormalities in our newborn screening results.  The newborn screening was something you just did, never thinking your child would have one of the conditions they tested for. I […]

Recipes Banging Broccoli Balls Curried Chickpea Fritters Flippin fantastic savoury pancakes Oaty Banana Bites Tangy Tabbouleh Healthy Popsicles 10th May 2013 Games Free Food Word Search Worksheet Fruit and Veg Colouring Worksheet I Spy and Count to 10 – Low Protein Worksheet (2) PKU Word Search Worksheet What’s in my lunch box Worksheet

The team at the NCIMD (National Centre for Inherited Metabolic Disorders) has learnt that the NCPE (National Centre for Pharmacoeconomics) has recommended against the funding of Kuvan (sapropterin dihydrochloride) for the treatment of PKU. The NCIMD team is disappointed to learn of this decision. The team is aware that this treatment may have a beneficial […]

A Homocystinuria (HCU) day is being planned for the 17th of October 2015.  It is being organised in conjunction with Nutricia.  Hopefully it will be a great day for everyone. More details to follow soon.

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