Nutricia have organised a summer event for patients on low protein diets for 22nd August 2015. The event is a Viking Splash tour in Dublin City Centre. If you are interested in attending, please see the information attached: Summer Event. Contact Nutricia on 1800 923 535 or email: events.ireland@nutricia.com or louise.durcan@nutricia.com to reserve your place.
Month: July 2015
Irish Society of Inherited Metabolic Disorders (ISIMD)
A new society has been launched called the Irish Society of Inherited Metabolic Disorders (ISIMD). For more information, please visit their website: www.isimd.ie
PKU Results Texting
In an effort to improve services, the dietitians in NCIMD have been piloting a service where a group of children have been receiving a text regarding their Phe levels. This has now been rolled out to all patients attending Temple Street Childrens University Hospital. If a blood result is within the normal range, the parent/guardian […]
PKU Association of Ireland meeting
The PKU Association are having a meeting on Thursday 9th July 7pm at the CityWest Hotel, Ormonde Suite, Saggart, Co Dublin. Parking available. All welcome. Please see the PKU Association’s facebook page for more information or mail pkuireland@gmail.com