Nutricia recently held a HCU event in Dublin on the 17th of October 2015. A product information session was presented by the Nutricia team. The medical update was provided by Dr.Ellen Crushell. There was a patient experience shared at the event. A delicious cooking demonstration was enjoyed by all!

On the morning of October 27th, the Metabolic Outpatients Department was transformed for the ‘premiere’ launch of the new book developed by Jill Moore (Play Specialist) and Jenny McNulty (Dietitian). The new book is called ‘Penny and Paul have PKU’ and is designed to educate children on the importance of the synthetic protein in the management […]

The Low Protein Living Weekend 2016 will take place on 26th-28th of February. See the following for more details: Low Protein Living Weekend 2016

The official launch of the metabolic website took place in Temple Street Children’s University Hospital on 15 October 2015.  Dr. Ellen Crushell, Metabolic Consultant, led proceedings with members of the NCIMD.  Other healthcare professionals and parents were in attendance.  It was a huge success.  

On Tuesday the 27th of October at 11am – The Metabolic Unit will be transformed to Launch the new Storybook “Penny & Paul have PKU”. If your child has PKU and is aged 3-8 years, come along to get your copy of storybook and meet the characters. There will lots of fun on the morning […]

Nutricia are doing a low protein cookery demonstration and workshop in Temple Street on the morning of October 14th. See the following for more details: Temple St Paediatric Event_Invite_14th Oct 15

In conjunction with the dietitians in Temple Street, Nutricia have organised a Weaning and Cookery Workshop for patients on low protein diets for October 13th in Dublin. Please see the following for more details: Dublin Parent-Weaning Invite 13th Oct 15

Nutricia have organised an event for patients with HCU for Saturday 17th October 2015. The event includes a cookery demonstration and a medical update on HCU. If you are interested in attending, please see the information attached: HCU Saturday 17th October. Contact Nutricia on 1800 300 414 or email: events.ireland@nutricia.com to reserve your place.

Sapropterin (Kuvan®) is a drug manufactured by the pharmaceutical company Merck Serono, which is useful in some variants of PKU, usually in addition to dietary treatment. In fact a small number of Irish patients were involved in the original clinical trial for this medication here at NCIMD. This medication is currently not funded by the […]

A storybook has been developed by Jill, our Play Specialist and Jenny, our Dietitian, about the importance of taking synthetic protein for certain conditions. Please watch this space for more developments.