Ms Aoife Fitagerald, Senior Metabolic Dietitian recently presented ‘Breastfeeding in Urea Cycle Disorder’ at the ‘Dietary Management of Inherited Metabolic Disorders’ conference sponsored by Nutricia Metabolics in London April 2016.
Patient and Family News
PKU Association
PKU Association meeting 21st June 7.30 at the Clayton Airport Hotel. All Welcome! They will be joined by Promin and Metax who will be handing out low protein goody bags. To make sure there are enough goody bags for everyone, please confirm your attendance to info@pku.ie.
Nutricia Low Protein Cookery Workshops and Weaning Talk
We are pleased to announce a number of events being hosted by Nutricia. Please contact Nutricia directly at events.ireland@nutricia.com for booking information. On the 16th June in the Radisson Hotel at Dublin Airport Nutricia will be running a low protein weaning talk and cookery demonstration – see link below. Nutricia LP Weaning talk and Cookery […]
ESPKU Conference 2016
The annual E.S.PKU Conference 2016 will take place in Dublin from November 3rd until November 6th. For more information, see: www.espku.org/conferences/e-s-pku-conference-2016/
Congratulations
Dr. Monavari and the staff of the National Centre for Inherited Metabolic Disorders would like to congratulate our colleagues on their new appointments with UCD. Dr. Ellen Crushell – Senior Clinical Lecturer Prof. Ina Knerr – Clinical Associate Professor Prof. Greg Pastores – Clinical Associate Professor
Irish Times – Living with PKU
The Health supplement in The Irish Times on 19 January 2016 featured families living with PKU. To read the article, please click here
Hurler BMT Conference
The Irish Society for Mucopolysaccharide diseases are holding a Hurler BMT conference on March 11th 2016. It is open to parents, partners, carers and healthcare professionals. For more details please see the attached: Programme for Hurler BMT Conference 2016
PKU Association of Ireland meeting
The next PKU Association of Ireland meeting will take place on Tuesday 26th January at 7.30pm in the Dean Swift suite in the CityWest Hotel, Saggart, Co Dublin.
Free Public Wi-Fi
We are delighted to announce that the National Centre for Inherited Metabolic Disorders is the first area in the Hospital to pilot free public Wi-Fi. We are now live. Please note the information signs at your next visit.
HCU and Methylation Defects Patient & Expert Meeting
A HCU and Methylation Defects Patient & Expert meeting will be held in Prague, on the 29th February 2016. It is a collaborative meeting for patients, clinicians and researchers. For more details please click on the Program for Patient & Expert meeting Prague.