On Tuesday the 27th of October at 11am – The Metabolic Unit will be transformed to Launch the new Storybook “Penny & Paul have PKU”. If your child has PKU and is aged 3-8 years, come along to get your copy of storybook and meet the characters. There will lots of fun on the morning […]
Month: September 2015
Low Protein Cookery Workshop in Temple Street
Nutricia are doing a low protein cookery demonstration and workshop in Temple Street on the morning of October 14th. See the following for more details: Temple St Paediatric Event_Invite_14th Oct 15
Low Protein Weaning and Cookery Workshop
In conjunction with the dietitians in Temple Street, Nutricia have organised a Weaning and Cookery Workshop for patients on low protein diets for October 13th in Dublin. Please see the following for more details: Dublin Parent-Weaning Invite 13th Oct 15
HCU Day 17th October 2015
Nutricia have organised an event for patients with HCU for Saturday 17th October 2015. The event includes a cookery demonstration and a medical update on HCU. If you are interested in attending, please see the information attached: HCU Saturday 17th October. Contact Nutricia on 1800 300 414 or email: events.ireland@nutricia.com to reserve your place.
SSIEM 2015, Lyon, France, 1-4 September (Update)
NCIMD was well represented at the recent international metabolic conference, SSIEM, in France. A number of presentations were presented by the NCIMD team on a variety of topics including our latest research into MSUD and mitochondrial disorders.
Kuvan®
Sapropterin (Kuvan®) is a drug manufactured by the pharmaceutical company Merck Serono, which is useful in some variants of PKU, usually in addition to dietary treatment. In fact a small number of Irish patients were involved in the original clinical trial for this medication here at NCIMD. This medication is currently not funded by the […]