There are a number of supports available for patients and families with a metabolic disorder. These supports include our social work team and our psychology department.
The Mater Hospital has an adult metabolic service. For more details, please see the following http://www.mater.ie/services/adult-metabolic-service/index.xml
A number of organisations offer support to those with metabolic disorders. Our families have recommended these associations and supports. NCIMD is not in any way directly involved with these organisations.
Please see below for more details.
Children Living with Inherited Metabolic Diseases (Climb) which is a registered charity that offers support to those with a metabolic disorder. For more details on Climb please follow this link Climb – Supporting Families, Changing Lives
The PKU Association of Ireland is a network of families and individuals who live with PKU. They are dedicated to providing support, information and social contact for both families and patients of all ages. They organise meetings and events where parents, adults and children with PKU can meet. For more information, please email firstname.lastname@example.org or see www.pku.ie
NSPKU.org is a UK based support organisation for families affected by PKU.
Thelilyfoundation.org.uk provides support to families affected by mitochondrial disease and funds research into mitochondrial disease. The Katie Rose Foundation is a new Irish based support group. For more information, please follow this link www.thekatierosefoundation.com
The Irish MPS Society
The Irish MPS society is a voluntary support group for all those with mucopolysaccharide and related diseases, their families, carers and professionals. For more details, please follow this link www.mpssociety.ie
For more information, please follow this link http://www.ilfs1.org