Change in target Phe levels for PKU management

The European Guidelines for Phenylketonuria were recently published. These guidelines were developed by a group of 17 well known European PKU experts. The group was made up of biochemists, dietitians, metabolic paediatricians, metabolic adult physicians and psychologists. In line with these new European Guidelines as of July 1st 2017, we are changing our target phenylalanine […]

National Children’s CNS Seminar 2017

The Second National Children’s CNS Seminar was held in the AMNCH Auditorium, Tallaght Hospital on Thursday 25th May 2017. The theme of the day was “Children’s Specialist Nursing – A Changing Landscape”.   The Metabolic Nurse Specialists (Celine Stenson and Maria O’Regan) won first prize for their poster presentation on the day. The title of their […]

Important change in Lucozade recipe

Lucozade drinks are changing their recipe to reduce the sugar content by 50%. Aspartame will be used instead which is contraindicated for all PKU and Tyrosinaemia patients. The change in sugar content will also effect patients who use Lucozade as part of their unwell plan or management for hypoglycaemia. Please note there will not be a […]

BraveBuds Challenge!

Over the next year, we want you to challenge your taste buds with a variety of fruits and vegetables. Each month we will post a new fruit or veggie for you to try and post a short blog with interesting facts, colouring pictures and recipes BraveBuds Challenge June is Suzy the Strawberry May is Piper the […]

Low Protein Living Weekend 2017

Nutricia are holding a Low Protein Living Weekend on 4th & 5th March in the Newpark Hotel, Kilkenny with a super hero theme!!  Dr. Aoife Brinkley, Clinical Psychologist and Orla Purcell, Senior Dietitian from NCIMD will be speaking at the weekend.  Please see attached for more information and registration details – LPLW 2017 Save the Date

Recent PKU Conferences

Members of the multidisciplinary team from the NCIMD attended the European PKU Symposium in Amsterdam. A feedback session was held for all staff earlier this month to update them on the highlights from the conference. The ESPKU was hosted in Dublin with support from the PKU society of Ireland, from the 4th to the 6th […]

New European PKU Guidelines

We are eagerly awaiting the publication of the new European PKU Guidelines which are due for release next year. We will be reviewing these guidelines as a team and how they can be implemented in Ireland. We will keep you updated on any further developments in relation to this.

Brains and Bones visit PKU clinic!

As part of Nutricia’s Anamix Club, Brains and Bones came to visit our PKU clinic recently. They met with some of our boys and girls and explained how their synthetic protein works in their body and why it is important. We also had a Halloween cookery demonstration with lots of scary treats and new cooking […]