Our metabolic dietetic manager, Anne Clark, has published an interesting article on the dietary management of PKU. Please follow this link PKU
A drop in session was held in Temple Street for all staff on updates from the metabolic service. These included: the PKU texting system for results, research posters, a year of the website and condition specific story books for children.
The European PKU Symposium will be taking place in Amsterdam in October 2016. A number of healthcare professionals will attend and present.
The SSIEM symposium is taking place in Rome in September 2016. A number of healthcare professionals from NCIMD will be attending and presenting.
Dr. Noelle Enright received an award for her presentation relating to Congenital Disorders of Glycosylation.
A number of projects were presented at the Research, Audit and Quality Improvement Day on Friday, 17th June. Topics included ERT, Maternal PKU, Galactosaemia and Kuvan trial.
The 3rd Panceltic Paediatric Gastroenterology Hepatology and Nutrition meeting took place on April 15th in Dublin. Dr. Ellen Crushell presented on metabolic liver disease.
Ms Aoife Fitagerald, Senior Metabolic Dietitian recently presented ‘Breastfeeding in Urea Cycle Disorder’ at the ‘Dietary Management of Inherited Metabolic Disorders’ conference sponsored by Nutricia Metabolics in London April 2016.
The “Irish nursing experience of discontinuing Enzyme Replacement Therapy” by Ms. Bróna Fletcher, Dr. Ellen Crushell, Dr. Joanne Hughes, Ms. Caroline Clancy & Ms. Eithne Losty was recently presented at WORLDSymposium.
The Metabolic Module was completed on 12th May, 2016. Congratulations to all who participated. Many thanks to all our speakers and presenters. A final word of thanks to the co-ordinators, AnneMarie Cullinane and Eilish O’Connell, Temple Street and Sara Raftery, DCU.