Ms Orla Purcell, our senior metabolic dietitian, won 1st place for her oral presentation on growth patterns in the Irish HCU population at the Temple Street Bi- Annual Research, Clinical Audit and QI Day. Well Done Orla!!
There were lots of posters and presentations at the Temple Street Bi-Annual Research, Clinical Audit and QI day by the metabolic team. Congratulations to all involved, Orla Purcell (senior metabolic dietitian), Emma Lally (metabolic dietitian), Yvonne Rodgers (Senior Clinical Psychologist), Dr Jennifer Finnegan, Rachel Finnegan (ERT co-ordinator) and Amy Craddock (senior dietitian). Well done to all!
Dr Power, the metabolic SHO, won 1st place for her metabolic presentation at grand rounds in TSCUH. Well Done Dr Power!!
The 2nd International Homocystinurias Patient-Expert Meeting will take place on September 4th 2017 in Rio de Janeiro, Brazil. The meeting is scheduled as a pre-meeting to the 13th International Congress of Inborn Errors of Metabolism. See the following for more details: www.hcunetworkaustralia.org.au/event/patient-expert-meeting-rio-2017/ Please note that this event is not organised by the NCIMD. Details are […]
The Second National Children’s CNS Seminar was held in the AMNCH Auditorium, Tallaght Hospital on Thursday 25th May 2017. The theme of the day was “Children’s Specialist Nursing – A Changing Landscape”. The Metabolic Nurse Specialists (Celine Stenson and Maria O’Regan) won first prize for their poster presentation on the day. The title of their […]
Members of the NCIMD team were involved in the publication of new clinical guidelines for the management of Galactosaemia and HCU. These have been published in the Journal of Inherited Metabolic Disorders.
The ESPKU Conference was held in November in Dublin. Some impressions, videos and other information on the conference are available on their website http://www.espku.org/conferences/e-s-pku-conference-2016/.
Members of the multidisciplinary team from the NCIMD attended the European PKU Symposium in Amsterdam. A feedback session was held for all staff earlier this month to update them on the highlights from the conference. The ESPKU was hosted in Dublin with support from the PKU society of Ireland, from the 4th to the 6th […]
We are eagerly awaiting the publication of the new European PKU Guidelines which are due for release next year. We will be reviewing these guidelines as a team and how they can be implemented in Ireland. We will keep you updated on any further developments in relation to this.
Our metabolic dietetic manager, Anne Clark, has published an interesting article on the dietary management of PKU. Please follow this link PKU